OCD Research Studies and Thankfulness

November 24, 2013 at 3:32 pm 13 comments

Sunflower-TurkeyIn a recent post, I talked about two of the more common roadblocks for those seeking treatment for OCD: a shortage of qualified OCD treatment providers and adequate healthcare coverage.

If you are fortunate to live near a large research university, you might be lucky enough to circumvent these two obstacles, as there just might be studies taking place that could provide treatment for obsessive-compulsive disorder at little to no cost. One such research study is now ongoing at the Pediatric Anxiety and Mood Research Clinic at Columbia University/New York State Psychiatric Institute.This is a clinical trial assessing the efficacy of an FDA-approved antibiotic (minocycline) for OCD sufferers between the ages of eight and twenty. It is an exciting study as preliminary results appear promising. Minocycline has fewer side effects than SSRI’s, is lower in cost, and has been used safely for years, mainly for the treatment of acne. Those participating in this study also receive free Cognitive Behavioral Therapy and are offered three months of follow-up care at no cost. Some participants might also be eligible for CBT and/or medication management outside of the study. For all eligibility and contact information, and to learn more about the study, click here.

Again, there are those who are working tirelessly to make life better for OCD sufferers and their families. As we enter this week of Thanksgiving, I am indeed thankful for all the professionals who have dedicated their lives to helping those with OCD. I am thankful to all of you who share your stories in the hopes of educating others and raising awareness of the disorder. I am thankful that my son Dan continues to do well. And I am thankful for my whole family, who have never once complained about the hours I spend at the computer advocating for those with OCD. I am indeed blessed.

Wishing you and your loved ones a happy Thanksgiving surrounded by those you love.

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13 Comments Add your own

  • 1. OCD in the Family (Angie)  |  November 24, 2013 at 5:20 pm

    That’s a good resource to remember, Janet. There are often universities that have OCD treatment centers affiliated with them and these will often have ongoing research happening. Valuable information.

    Reply
    • 2. Janet (ocdtalk)  |  November 24, 2013 at 7:01 pm

      I agree, Angie, and I know some universities have clinics as well.

      Reply
  • 3. C  |  November 24, 2013 at 5:34 pm

    This is the first I’ve heard about minocycline! I take minocycline twice a day for my skin–it’s been the only thing that’s ever worked. How strange that this drug I love that gives me clear skin is also being researched for OCD. Thankful for your blog!!

    Reply
    • 4. Janet (ocdtalk)  |  November 24, 2013 at 7:02 pm

      Thanks for sharing, C. That is quite the coincidence, isn’t it!

      Reply
  • 5. Tina Fariss Barbour  |  November 24, 2013 at 10:11 pm

    Bless you, Janet, for all you do for those with OCD and their families. I have learned so much by reading your blog, and you always give me things to think about. I’m thankful that there are studies like the one you write about above and others that are seeking to help OCDers. And I’m thankful that there are ways that we can communicate about OCD. I remember a time when it was difficult to talk to anyone about it, not just because of the fear, but because we lacked the ability to easily share (e.g. Internet).

    Happy Thanksgiving to you and your family!

    Reply
    • 6. Janet (ocdtalk)  |  November 24, 2013 at 11:17 pm

      Thank you so much, Tina, for your kindness. I agree the Internet has been a godsend for sharing. Happy Thanksgiving to you and your family also!

      Reply
  • 7. F. Zare  |  November 25, 2013 at 1:46 am

    Hi Janet, My son has had acne for a few years. He was prescribed Minocycline and he was on it for 6 months, 200 mg/day. Acne got much better, but no effect on anxiety. I finally discontinued because I did not want my son to be on antibiotics for ever to have clear skin. Unfortunately when my son was on all sorts of SSRI and some other similar meds, nothing helped and some side effects were pretty bad. CBT never helped him either. He says his mind always finds a way to make the trick not work. It only worked once or twice. We are still struggling with Anxiety/OCD. Thanks for your posts and have a great Thanksgiving break.

    Faye

    Reply
    • 8. Janet (ocdtalk)  |  November 25, 2013 at 9:31 am

      Thanks for your comment and well wishes, Faye. I am so sorry nothing has helped so far for your son. I can’t help thinking that with the right therapist ERP could be successful. Wishing you all the best and hope you have a nice Thanksgiving.

      Reply
    • 9. Columbia PAMRC  |  December 18, 2013 at 10:57 am

      Hi Faye, thank you for your comment! My name is Prerna Martin and I work at the Columbia clinic that Janet mentioned in her post. I’m sorry to hear that the treatments that your son has tried haven’t helped him so far. A lot of our work in OCD is focused on providing treatments for youth that haven’t responded to front-line interventions like SSRIs and CBT. We work closely with other families whose experience with their child’s OCD treatment has been very similar to yours, and we can understand how incredibly frustrating and discouraging it can be. If you’d like to talk more about treatment options, please feel free to give me a call at 646-774-5793. We’re happy to provide a phone or in-person consult. Hope you and your family have a wonderful holiday season!

      Warm regards,
      Prerna
      pmartin@nyspi.columbia.edu
      646-774-5793

      Reply
  • 10. OCD in the Family (Angie)  |  November 28, 2013 at 1:33 pm

    Hi Janet. Happy Thanksgiving! I’ve given you an award. Thanks for being an inspiration:

    The instructions for this award are simple:

    1 Select the blog(s) you think deserve the ‘Blog of the Year 2013’ Award

    2 Write a blog post and tell us about the blog(s) you have chosen – there are no minimum or maximum number of blogs required – and ‘present’ the blog(s) with their award.

    3 Let the blog(s) that you have chosen know that you have given them this award and share the instructions with them – (please don’t alter the instructions or the badges!)

    4 Come over and say hello to the originator of the ‘Blog of the Year 2013’ Award via this link – http://thethoughtpalette.co.uk/blog-awards-2/blog-of-the-year-2013-award/

    5 You can now also join the ‘Blog of the Year’ Award Facebook page – click the link here https://www.facebook.com/groups/BlogoftheYear/ and share your blog posts with an even wider audience.

    6 And as a winner of the award – please add a link back to the blog that presented you with the award – and then proudly display the award on your blog … and start collecting stars…

    Reply
    • 11. Janet (ocdtalk)  |  November 29, 2013 at 8:33 pm

      Angie, Thank you so much for this award. It truly is nice to be appreciated! When I started my blog I decided not to participate in any of the blog awards, for the simple reason that I just don’t have the time. So I apologize for that, but I do appreciate your including me. Hope you had a nice Thanksgiving.

      Reply
      • 12. OCD in the Family (Angie)  |  November 29, 2013 at 8:45 pm

        You are welcome! And whether you participate, or not, I want you (and others) to know how much I appreciate your writing. Best to you and yours. :-)

      • 13. Janet (ocdtalk)  |  November 29, 2013 at 9:08 pm

        Thanks, Angie, and right back “atcha” :)!

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