If you’ve read my book, you know that many issues arose when my son Dan spent nine weeks at a residential treatment center for OCD. There’s no question the staff there knew how to treat OCD. What they didn’t know, and what they couldn’t know, was my son: his hopes, his dreams, his values, HIM. Instead of working together with the staff to figure out the best course of action for Dan, my husband and I felt not only shut out, but also viewed as part of the problem.
So when Dr. Suzanne Phillips, who recently interviewed me and Seth about our book, sent me a New York Times article entitled The New Child Abuse Panic, I broke out in a sweat as I read it. This could have been us.
I highly recommend reading this important article, which discusses how parents are increasingly being charged with “medical child abuse.” The author, Maxine Eichner, says:
Although most of these cases have nothing to do with real child abuse, credulous child welfare officials have too often supported the doctors, threatened parents with loss of custody, and even removed kids from their homes — simply because the parents disagreed with the doctor’s plan of care.
The most widely publicized case, which is discussed in The New York Times article, involved that of Justina Pelletier, a teenager who was being treated for mitochondrial disease. Her parents lost custody of her and she was forcibly removed from her home for sixteen months because some doctors disagreed with the diagnosis, which was later confirmed. I remember hearing her story on the news a couple of years ago, and thought I must have misunderstood it. Taken away from her family because some doctors disagreed with care she was receiving from other doctors? It made no sense. But it was true, and it is even more of an issue now. It is a scary situation for parents and caregivers.
So what do we do? In relation to obsessive-compulsive disorder, I think education continues to be the key. Many people still believe OCD is only about germs, hand-washing, and rigidity. As most of us know, in actuality there is no limit to the ways OCD can present itself. We shouldn’t have to convince professionals that fear of hurting a loved one, fear of offending God, fear of taking a test, or avoidance of just about anything, are just a few of the countless symptoms of OCD.
As parents and caregivers, we need to educate ourselves and others. We need to treat medical professionals with respect and expect the same in return. If we ever feel threatened in any way, we need to seek out appropriate support immediately. We need to realize that while there are many caring, qualified professionals out there, there are also those who are misguided. And as I’ve said before, nobody knows our loved ones, cares about them, or wants them to get well, more than we do. That alone is reason enough to be heard.